Friday, February 13, 2009

I Love Him!

We are so grateful to the doctors and staff at the University Neuropsychiatric Institute and the Kidstar program. It has now been a few weeks of testing, uncertainty, worst case scenarios, divorced parent disputes, blessings, and prayers. Yesterday Spencer was diagnosed with high functioning autism. Everyone had worked so hard to help Spencer learn and progress while at the same time, trying to pinpoint a diagnosis. I am so relieved because with all the troubling events that led up to our getting help, even contemplating the worst case scenarios terrified me. I was extremely worried about him, and I still am, but at least now I know what I can do to help him. They say Spence is "on the spectrum" of Autism. When they say he has "high funcitoning" Autism (from what I understood yesterday), it means he is able to perform day to day activities very well, some extremely well, with a few exceptions. It is essentially affecting him, or hurting him, socially. To those of you who know him, you'll agree that Spencer is a delightful and extremely bright and kid, but he oftentimes has difficulty making friends or knowing how to interact with them unless they are playing Starwars. He quickly withdraws in many social settings and feels lonely a great deal of the time. Especially in school and at church. What we are trying to do right now is teach him those crucial social skills that usually come naturally to people. That is the area that we need help. When you see him, put your arm around him and help him know you are his friend. If possible, go out of your way to include him in what you are doing. He may give you the cold shoulder. But don't take it personally, he certainly doesn't mean to offend or hurt anyone's feelings. . . he's just an extraordinary little boy who's going to need an extra hand from time to time. I love him!

8 comments:

bekka said...

I'm so glad you have some answers!

Cristi said...

I'm SO happy for you guys that you've been blessed and now know what direction to go!

Bronwyn James said...

Rochelle, what a sweet picture of you two! We'll definitely say a prayer for you guys. He looks like a wonderfully sweet kid. And you're sure a sweet mom!

Tiffany Hales said...

Sounds like February is a much better month for you than January! My heart feels for you, but now you know what you are facing you can deal with it. Since I don't get to see you as often as I used to, please give Spencer a hug from me and let him know your friend Tiffany thinks he is an awesome little boy.

Sarah said...

Spencer is such a great little guy. I have a student who was diagnosed with high functioning autism. His parents got him going on some nutrition stuff and he seems perfectly normal to me now. I'll try to get more info to you if you want. I know you're probably being bombarded with all kinds of advice, but you guys will get through!!! You're the greatest, hang in there.

Sushi-Mama said...

Hi. Wow. I am so happy that you have answers. The worst is not knowing- don't ya' think? Although, I am practically in tears thinking about all you've gone through and thinking about how similar our children are. She's doing amazingly well (behavior wise) on her current meds, but her teacher says she can't focus. We need to talk. Are you heading this way anytime soon? Love you!

Marcie said...

Rochelle, I am so glad that you are able to know so that you can stop the worry-- and start in the right direction. In my family, we know how scarry that diagnosis can be, but Spencer is young and he will pull through this.

From the day I met Skinny Blue, I have loved him. I will always love him. Make sure he knows his aunt CeeCee loves him very much. Maybe I should write him a letter? Email me your addy.

Love you Ro-- you are in my prayers.

Ginny said...

Sooo...i come out of the closet! it was really good to see you and catch up on Saturday. I am thrilled for you that you are getting some answers and finding some direction with spencer! good luck as you continue to discover with him!!!